Our Way

I’m not sure if it was the package of Bertie’s Every Flavor Beans or the recent memory of Halloween, but when one of my daughters asked our youngest if she wanted to try a questionable jelly-bean and I hesitated, not knowing the allergens involved, I saw, for the first time, our youngest change. 

She understood and was affected. 

Rather than ignore, I followed her into her bedroom and quietly conversed, “Hey, how are you?”

Forlornly, she looked at me and I knew the jig was up.  

There was no more fooling this three “and-a-half” year-old.  

I decided to meet her where she was.

“Are you sad because you aren’t able to eat the same things as your sisters?”

It was a first admission of mine. The terrible truth almost always substituted or downright avoided. 

Instead of answering, she buried her head into my shoulder and wept.  

What is a mother to do?

Pancakes, muffins, cupcakes, waffles, even popsicles I can substitute.  

But jellybeans on the fly?  I’m out of my realm.  

She’s too old to fool. 

Instead, I meet her. 

Yes, this sucks. 

No, this isn’t fair.  

Yes, you can be sad and angry.  

And together, we will find your way, child.  

We are more than the worst thing that has ever happened to us. 

We will find our way.  

Skittles

“Nobody knows how the story ends

Live the day, doing what you can

This is only where it began

Nobody knows how the story ends.”

And so goes the life of our Elizabeth. 

Little Lizzie had 10 vials of blood taken last week.  She’s still severely allergic to dairy, egg and peanut and FPIES (Food Protein Induced Entercolitis Syndrome) to rice, sweet potato, avocado, quinoa and beef.  

We have avoided soy, corn and wheat out of utmost caution for her severe eczema. 

Until tonight-

When she tried a skittle (corn syrup). 

I’ve had four children. 

Eating a skittle has never been a bigger deal. 

She called her big sister, Harper, specifically, in to witness the event. 

And she still wouldn’t chew- only lick. 

This month Elizabeth turns three and our journey continues- likely with a lot of food therapy in our future. 

Acceptance of new tastes and textures- trusting the foods she has always avoided.  

“Nobody knows how the story ends

Live the day, doing what you can

This is only where it began

Nobody knows how the story ends.”

“Nobody Knows” by The Lumineers

Live

First, it’s a bump.  A setback. A hinderance. 

Then, quite suddenly, a demand for attention. 

We explore options.  We’re optimistic. 

Sure, we stumble, but who doesn’t? 

And then, 

it’s different. 

It’s not a challenge to overcome anymore. 

It’s a new way of life. 

One we never asked for, nor wanted. 

We’re faced with a Dead End. 

Or, are we?

We stop.  We cry.  We lament. 

Then we retrace our steps and get our asses back on the 

Right. Damn. Track. 

Because when faced with a dead end, 

Other than dying, 

What are we supposed to do?

Live. 

We live. 

Camille Vaughan Photography

Necessity

Let me guess,

You didn’t want to, right?

But you had to.

Out of necessity.

Yea, I get it.

I’m that advocate, too.

And, likely, over half of those poor bastards you interact with on a daily basis are in the same spot.

Stuck, but still caring.

Trapped, but still loving.

Cornered, but still exploring options.

Always, continuously, every day.

Caring. Loving. Advocating.

Repeat.

Repeat.

Repeat.

Tired, but Repeat.

Exhausted, but Repeat.

No other options so, Repeat.

Yea, we’re tired.

But you know what else?

We’re resilient as hell.

We can see others differently, in spite of.

We can empathize.

We can offer a hand.

We can endure,

Out of necessity.

Camille Vaughan Photography