And it happened again today when I read a line from an advice column:
“Children of alcoholics are often on high alert trying to anticipate other people’s feelings, so they can try to head off problems or incidents before they become overwhelming.”
The camera of my life came into focus.
The dots connected.
And for a moment, time stopped
As my mind rewinded
To the friendships I had ruined by suffocating them with my need to control
And the relationships I had endured because I expected no better.
Recently, I was told that I am “overwhelming” and “exhausting”.
And the thing is: it’s not untrue.
I am 100% both of those things.
I live life fast and furiously, never wanting to miss a moment or waste a day- including days with zero plans because those often offer the best unplanned fun.
And I document them!
Boy, do I document them.
Because I never want to forget.
But in my hard-life-living, I’ve also experienced personal casualties and wondered,
“What’s wrong with me?”
“Am I too much?”
“Am I not enough?”
The doubt creeps in and for a minute I think, “Yes, I should be smaller.”
Then, I remember a poem read to me by a speaker at a conference:
Our deepest fear is not that we are inadequate. Our deepest fear is that we are powerful beyond measure. It is our light, not our darkness That most frightens us.
We ask ourselves Who am I to be brilliant, gorgeous, talented, fabulous? Actually, who are you not to be? You are a child of God.
Your playing small Does not serve the world. There’s nothing enlightened about shrinking So that other people won’t feel insecure around you.
We are all meant to shine, As children do. We were born to make manifest The glory of God that is within us.
It’s not just in some of us; It’s in everyone.
And as we let our own light shine, We unconsciously give other people permission to do the same. As we are liberated from our own fear, Our presence automatically liberates others.
—Marianne Williamson
I *remember* hearing this poem for the first time and the fire that it ignited in me.
And as a mother of four daughters,
I’ll be damned if anyone tries to put that out.
Our girls will not accept mediocrity, if I have anything to do with it.
They will strive for their best and nothing less.
And you know why?
Because they are worth it!
Because we all are all worth it!
And because, as the poem says, we are all better when we let our light shine.
A place where, although still heavily restricted, we at least know what we are dealing with.
For three years, feeding Elizabeth was a game of Russian roulette.
Try a new food and wait 2-4 hours to see if she begins to vomit. Sometimes until her body goes into shock.
Repeat for the next fourteen days because she could pass the first few trials and fail the seventh attempt.
Such is the life of a child with FPIES- Food Protein Induced Enterocolitis, a nightmare of an intestinal allergy with no formal testing other than eating the food and seeing what happens.
Pair that with IgE mediated allergies to dairy, eggs and peanuts, throw a gluten intolerance that triggers severe eczema on top of it and you have our fourth baby girl.
Our little warrior, who in her first few years, endured misery.
The ocean water burned Elizabeth’s skin so badly during our family photo shoot, we had to stop. Camille Vaughan Photography
No wonder she was growth restricted in the womb! No wonder she didn’t just spit up but vomited after each nursing session! No wonder she never slept and always cried. The foods I was eating were her triggers and I had. No. Idea.
I eliminated all major allergens and lost twenty pounds in my attempts to continue to nurse her only years later to find out that the avocado I was surviving on was one of her triggers.
It took batteries of tests, UV light therapy and trial-and-error with her diet to realize her horrific head-to-toe eczema was caused by wheat. Steroid creams, nightly wet-wraps, and baths with me at 2 o’clock in the morning in desperate attempts to provide relief, even if temporary.
Yes, I keep putting it off because if I’m being honest, I don’t want to go back there.
I am running away as fast as I can from those awful memories, from the trauma that was raising baby Elizabeth.
But without risk we become stagnant.
Her diet never evolves and we never know, unless we try . . .
And so I finally take the call.
I set the date.
And I wait.
Camille Vaughan Photography
This is the first of many in-office food challenges for Elizabeth because she has so many FPIES fails: rice, sweet potato, beef, avocado, peanuts, and quinoa just to name a few.
But in a few weeks we begin with rice.
The first challenge: getting her to agree to eat a cup of the food.
A child with food allergies learns to become wary of any new food not previously deemed “safe” so I’ve had to start having conversations with her about trying this new food further adding to my guilt.
What if she fails?
What if I convince her to eat it all and she begins to vomit?
What will that do to her trust in me?
How will I stand myself?
I’ve held her limp, near lifeless body in my arms after an FPIES fail. I’ve helped load her onto a stretcher and into an ambulance at just 9 months-old. I’ve witnessed my husband and babysitter administer an Epipen three times while on the phone with 911.
I don’t want to go back there.
And yet, here we are.
Facing the trauma.
Looking beyond the wave of fear with the hope of passing and swimming in the deep richness of food variety with her sisters.
“But the other kids are going to know I’m leaving.” She lamented.
I could have lied. I could have lost her trust by trying to convince her that, no, they wouldn’t.
But I met her where she was.
“Yes. Yes, they will. And this is a choice you have to make.” I said, instead.
“Either you endure a read-aloud that sends you into a full-blown panic-attack or you make accommodations for yourself, like anyone else with a disability does and you excuse yourself to the library. In other words, you own it.”
For me, it’s environmental allergies. When I pet a dog, I immediately wash my hands. I’ve owned dogs. I love dogs, I take allergy shots for dogs, but I am, alas, allergic to dogs. I make accommodations.
For her sister, it’s food allergies. I make separate meals three times a day to accommodate.
My daughter suffers from anxiety. We treat with professionals and we do the best we can do avoid triggers, when we can.
“What will I say, when they ask why I’m reading a different book?”
“You tell them the truth.” I explain. “You own it, you brave, girl. And you give others the chance to know that they are not alone, if they, too, feel the same way.”
New Leaf Parenting 